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End of Life Online Curriculum

 

End of Life Information Toolbox

Websites

Non-Governmental Organizations

National Hospice and Palliative Care Organization. (Link)

Largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

American Academy of Hospice and Palliative Medicine (AAHPM). (Link)

Organization of physicians and other medical professionals dedicated to excellence in palliative medicine, the prevention and relief of suffering among patients and families by providing education and clinical practice standards, fostering research, facilitating personal and professional development of its members, and by public policy advocacy.

The American Board of Hospice and Palliative Medicine (ABHPM). (Link)

Establishes and implements standards for the certification of physicians practicing hospice and palliative medicine. ABHPM creates and administers the certifying examination, works to implement high standards for training, and contributes to setting the standards for excellence in palliative medicine.

Educating Physicians about End-of-life Care (EPEC). (Link)

The EPEC mission is to educate all healthcare professionals on the essential clinical competencies in palliative care.

End-of-life / Palliative Education Resource Center (EPERC). (Link)

Assists physicians and other educators involved in all aspects of physician end of life (EOL) education through brief abstracts describing peer-reviewed instructional and evaluation materials, a list of core resources for EOL educators and opportunities for training, extramural funding, and pending conferences and submission of your educational materials for peer review and potential inclusion on the site.

TIP: Use the special VA login and password to access EPERC easily as follows: LOG IN: va.gov, PASSWORD: va.gov

Hospice and Palliative Nurses Association (HPNA). (Link)

Promotes understanding of and research in the specialties of hospice and palliative nursing.

Palliative Care. (Link)

Nurses share information with other professionals about initiatives related to improving patient care at the end of life.

Center to Advance Palliative Care (CAPC). (Link)

Helps institutions build clinical palliative care programs in the US. They have many resources to assist individuals beginning a hospital or nursing home based palliative care program.

Last Acts. (Link)

Campaign to improve end-of-life care by a coalition of professional and consumer organizations. We believe in palliative care, focused on managing pain and making life better for individuals and families facing death. Last Acts envisions a world in which dying people and their loved ones receive excellent care and are honored and supported by their community. This site is for professionals and volunteers working to improve care of the dying.

National Prison Hospice Association. (Link)

Promotes hospice care for terminally ill prisoners.

Innovations in End-of-life CareInternational, online journal features peer-reviewed promising practices in end-of-life care, useful tools, selected bibliographies, and other resources. (Link)

Hospice Foundation of America. (Link)

A not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. Through programs of professional development, research, public education and information assists those who cope either personally or professionally with terminal illness, death, and the process of grief.

Center to Improve Care of the Dying. (Link)

CICD is a unique, interdisciplinary team of committed individuals, engaged in research, public advocacy, and education activities to improve the care of the dying and their families. Dr. Joanne Lynn, an ethicist, hospice physician, and health services researcher serves as Center Director.

Toolkit of Instruments (TIME) (Link)

Joan Teno, of the Center for Gerontology and Health Care Research at Brown University, and faculty and staff at the Center to Improve Care of the Dying, have assembled a comprehensive annotated bibliography of instruments to measure the quality of care at the end of life. Also generated from this project is a draft set of instruments that have proven useful for monitoring system performance for end-of-life care.

Growth House (Link)

Growth House is an international gateway to resources for life-threatening illness and end of life care.

Inter-Institutional Collaborating Network On End-of-life Care (Link)

The Inter-Institutional Collaborating Network On End-of-life Care (IICN) provides the web-based user registration and content management services to over thirty major health care organizations internationally

Stanford Faculty Development Center (SFDC) End-of-life curriculum in Growth House. (Link)

The Stanford Faculty Development Center (SFDC) developed a 16-hour faculty development course incorporating basic material designed to be used by physicians in any area of expertise. This web-based curriculum is an adaptation of materials developed for that course.

Edmonton Palliative Care Program. (Link)

Hosted by the University of Alberta, Department of Oncology this site is a repository of extensive clinical information, patient materials, and a pilot Web-based training course, PallCare EdNet.

City of Hope Pain/Palliative Care Resource Center (COHPPRC). (Link)

The purpose of the COHPPRC is to serve as a clearinghouse to disseminate information and resources that will enable other individuals and institutions to improve the quality of pain management.

StopPain.org (Link)

Hosted by Beth-Israel Medical Center, this site hosts an inter-active module on neuropathic pain.

Comprehensive Care Team (CCT) website (Link)

Presents a few of the images and stories from the CCT's "Art Experiential" project. In this project, patients, their caregivers, and their clinicians had an opportunity, via art, to share their thoughts and feelings about serious illness, interpersonal connection, and hope.

Diversity Report: Last Acts Bibliography of Resources on How Cultural Differences Affect End-of-Life Decision-Making and Care (Link)

HFA Email Newsletter-Focus is on the Impact of Culture on Grief and End-of-Life Issues

Dying Well (Link)

Dr. Ira Byock, author of "Dying Well" and past president of the American Academy of Hospice and Palliative Medicine, provides resources including full-text articles, and a "What's New" section.

On Our Own Terms (Link)

This site offers a broad variety of resources on end of life care including an in depth assortment of articles, written by experts in the field on aspects of end of life care ranging from management to grief counseling for children, a guide to financial planning for end of life care, a digital diary of a dying patient's hospice experience, a debate between two leading doctors over the pros and cons of physician-assisted suicide and more…

Project on Death in America-Library Catalog (Link)

This is the online catalog of the holdings of the Library of the Project on Death in America (PDIA) lists complete references for about 600 documents in the PDIA Library collection of books, non-governmental organization reports, and videos concerned with such topics as death and dying, bereavement, grief, mourning, and palliative care.

Pain and The Law (Link)

This site has been developed by the Center for Health Law Studies at Saint Louis University and the American Society of Law, Medicine and Ethics under a grant from The Mayday Fund and features material on the legal aspects of pain.

The Internet Cremation Society (Link)

This cremation portal will help you find low cost cremation providers, a specialty urn company, a unique scattering service, an on-line obituary site or just general information about cremation.

Health and Well Being of Rural Elders (Link)

This site offers free web-based patient cases to use as instruction material for geriatrics and geriatric medicine.

Washington State Hospice and Long Term Care Interest Group (Link)

This organization seeks to enhance the quality of care for patients receiving hospice services while living in a long term care facility by developing collaborative partnerships to recommend an educational curriculum for both long term care and hospice providers, establish guidelines for planning care focused on the patient and family and assist in the development of program standards, policies and procedures pertinent to the care of this population.

Compassion in Dying Federation (Link)

Provides national leadership for client service, legal advocacy and public education to improve pain and symptom management, increase patient empowerment and self-determination and expand end-of-life choices to include aid-in-dying for terminally ill, mentally competent adults

Aids.Org (Link)

The mission of AIDS.ORG is to help prevent HIV infections and to improve the lives of those affected by HIV and AIDS by providing education and facilitating the free and open exchange of knowledge at an easy-to-find centralized website.

Palliative Care Council of South Australia Multicultural Guidelines (Link)

The Council has posted a FREE ful-text book containing multicultural treatment guidelines to end-of-life care.

The Washington Home Center for Palliative Care Studies (Link)

This center is a scholarly team that conducts research and supports quality improvement efforts designed to make the end of life comfortable and meaningful. In particular, the Center works to help the public learn how to manage end-of-life issues, and to help health care providers learn how to improve their practices. The Center, which has been at work since 1995, joined RAND in 2000

Hospice Web (Link)

This site helps patients locate hospice resources by zipcode.

International Association for Hospice and Palliative Care (Link)

Pain Medicine & Palliative Care (Link)

American Psychological Association. End-of-life Issues and Care. (Link)

 

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©End of Life Curriculum Project, a joint project of the US Veterans Administration and SUMMIT, Stanford University Medical School.
Funded by a grant to the Veterans Administration Nationwide Palliative Care Network by the National Library of Medicine. VJ Periyakoil, MD, Director.